Link to "Beads of Courage Canada"
This past week I was interviewed by a writer hired by CF Canada who is doing a fundraising letter featuring our family. This letter will be mailed out across Canada with the hope of raising awareness and funds for Cystic Fibrosis Canada. After being interviewed it really brought me back to when he was first diagnosed right up until now and all that he's been through. Clinic visits, throat cultures, stool analysis, ultrasounds, chest x-rays, blood-work, needles, needles and more needles. Add that to the numerous daily medications and hours of physiotherapy that will only increase as he gets older. Did I mention he's not even 2! This is what the Beads of Courage program aims at highlighting; all that he's been through, and will continue to go through, as the years go on. Each bead represents one part of his journey with Cystic Fibrosis.
We feel fortunate that Nash has been fairly healthy with only numerous colds and rounds and rounds of antibiotics. He has not been admitted and his only "procedure" coming up is a preventative one in the way of a Bronchoscopy. His Bronchoscopy will take place this summer, and while only a 15-minute procedure, will he will need to be put out.
We went over the whole process this week with our Respirologist and she was able to show me a bronchoscopy camera that they had hooked up to a computer and went through step-by-step the entire procedure. When asked whether I was ok with doing it I replied by saying that if they felt that the benefits outweighed the risks and they felt it necessary then we were ok with doing it. She explained that some clinics do them more often, some not at all unless there is a problem and that as a CF clinic, they are middle of the road with their approach. In our eyes, we would rather know if there is some form of bacteria in his lungs causing damage than not, so we will be going through with it.
Nash's Beads of Courage - April 2013 |
No comments:
Post a Comment